FC Barcelona Foundation gives visibility to rare diseases
On World Rare Disease Day the FC Barcelona Foundation showed solidarity with all patients who have any of these conditions, and their families. Both in the Palau Blaugrana, with the collaboration of Barça Regal players, and social networks, the Foundation raised its voice about these diseases.
Barcelona (FCB).- Wednesday February 29th marks the World Rare Disease Day and the FC Barcelona Foundation added its voice to the cause. Last Sunday, the Barça\u2019s Foundation invited to the Barça Regal vs Mad-Croc Fuenlabrada basketball match twelve children suffering from some of these conditions, accompanied by their families. At the end of the game the children had their photos taken with members of the Regal Barça squad, as a sign of awareness for the cause.
Visibility on social networks as well
The FC Barcelona Foundation, through its Facebook page, and the Catalan sports club\u2019s social networks, also wanted to give visibility to an awareness video produced by FEDER, the Spanish Federation for Rare Diseases. As reported by this organisation, \u201Cthe aim of this World Rare Disease Day is to position these diseases as a health and social priority. Lack of information and social ignorance of these conditions leads to situations like the average diagnosis time 5 years, or that 76% of people who suffer the diseases feel neglected and discriminated against\u201D.